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Volunteers and staff at the National PKU Alliance recently visited Washington, D.C. to inform legislators about such critical issues as the Medical Foods Equity Act and insurance reimbursement. NPKUA Executive Directo...
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Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...
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Christine Brown, Executive Director of the National PKU Alliance, discusses a new fundraising campaign to raise funds for PKU research. More information can be found at http://npkua.org/NewsEvents/LiftingtheLimits.aspx.
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In October 2014 I traveled across the world to Australia to attend some PKU events. Here's a quick recap of my trip, and some insight into the PKU experience in Australia.
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Dr. Cary Harding shares some information about a recent gathering of international PKU researchers. Shot on location at the Northwest PKU Alliance Family Camp in Oregon.