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Video: Lobbying for PKU on Capitol Hill

Added by 8 months ago

1.03K Views0 Comments

Volunteers and staff at the National PKU Alliance recently visited Washington, D.C. to inform legislators about such critical issues as the Medical Foods Equity Act and insurance reimbursement. NPKUA Executive Directo...

Video: Interview with #PKUChat Host Lillian Rodriguez

Added by 11 months ago

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Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...

Video: Lifting The Limits For PKU

Added by 1 year ago

1.64K Views1 Comments

Christine Brown, Executive Director of the National PKU Alliance, discusses a new fundraising campaign to raise funds for PKU research. More information can be found at http://npkua.org/NewsEvents/LiftingtheLimits.aspx.

Video: PKULifeTV Trip to Australia 2014

Added by 1 year ago

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In October 2014 I traveled across the world to Australia to attend some PKU events. Here's a quick recap of my trip, and some insight into the PKU experience in Australia.

Video: Northwest PKU Alliance Family Camp

Added by 1 year ago

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Dr. Cary Harding shares some information about a recent gathering of international PKU researchers. Shot on location at the Northwest PKU Alliance Family Camp in Oregon.

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Short Film: For Katy – Now Free to View!

Added by 1 year ago

23.88K Views13 Comments

"For Katy" is now free to view thanks to PKULife.tv's sponsor, PKU Perspectives! Katy is seven years old and has Phenylketonuria (PKU), a rare genetic disease in which the body cannot metabolize protein properly. M...

Short Film: My PKU Life

Added by 4 years ago

11.92K Views11 Comments

My name is Kevin Alexander, I'm a professional videographer, and I have PKU, also known as Phenylketonuria. This is my story.

Video: Tuxes for Tia

Added by 2 years ago

7.84K Views0 Comments

Produced in partnership with the National PKU Alliance, this film illustrates the daily challenges of living with PKU... and why staying on the "diet for life" is so essential.

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Short Film: For Katy – Now Free to View!

Added by 1 year ago

23.88K Views13 Comments

"For Katy" is now free to view thanks to PKULife.tv's sponsor, PKU Perspectives! Katy is seven years old and has Phenylketonuria (PKU), a rare genetic disease in which the body cannot metabolize protein properly. M...

Short Film: My PKU Life

Added by 4 years ago

11.92K Views11 Comments

My name is Kevin Alexander, I'm a professional videographer, and I have PKU, also known as Phenylketonuria. This is my story.

Video: Tuxes for Tia

Added by 2 years ago

7.84K Views0 Comments

Produced in partnership with the National PKU Alliance, this film illustrates the daily challenges of living with PKU... and why staying on the "diet for life" is so essential.

Video: PKULife.tv Announcement

Added by 1 year ago

2.77K Views3 Comments

PKU Advocate Kevin Alexander announces plans for future content on PKULife.tv.

Video: How to Maintain a Good Relationship with your PKU Clinic

Added by 1 year ago

5.77K Views3 Comments

Dietitian Kea Crivelly from Tulane University Medical Center shares some tips for getting the most out of your relationship with your PKU clinic. In the video I mention the article "Newborn Screening 50 Years Later". ...

Video: Update on the Home PHE Monitor

Added by 1 year ago

3.81K Views3 Comments

Dr. Tom Franklin, Chair of the NPKUA Scientific Advisory Board, gives an update on the latest research into the development of a Home PHE Monitor. This interview was recorded on location at the 2014 National PKU Allia...

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Short Film: For Katy – Now Free to View!

Added by 1 year ago

23.88K Views13 Comments

"For Katy" is now free to view thanks to PKULife.tv's sponsor, PKU Perspectives! Katy is seven years old and has Phenylketonuria (PKU), a rare genetic disease in which the body cannot metabolize protein properly. M...

Short Film: My PKU Life

Added by 4 years ago

11.92K Views11 Comments

My name is Kevin Alexander, I'm a professional videographer, and I have PKU, also known as Phenylketonuria. This is my story.

Video: Update on the Home PHE Monitor

Added by 1 year ago

3.81K Views3 Comments

Dr. Tom Franklin, Chair of the NPKUA Scientific Advisory Board, gives an update on the latest research into the development of a Home PHE Monitor. This interview was recorded on location at the 2014 National PKU Allia...

Video: How to Maintain a Good Relationship with your PKU Clinic

Added by 1 year ago

5.77K Views3 Comments

Dietitian Kea Crivelly from Tulane University Medical Center shares some tips for getting the most out of your relationship with your PKU clinic. In the video I mention the article "Newborn Screening 50 Years Later". ...

Video: PKULife.tv Announcement

Added by 1 year ago

2.77K Views3 Comments

PKU Advocate Kevin Alexander announces plans for future content on PKULife.tv.

Video: PKU and the Brain

Added by 1 year ago

3.09K Views3 Comments

Dr. Shawn Christ discusses his latest research on PKU and gray matter in the brain.