Newest Content

Video: Lobbying for PKU on Capitol Hill

Added by 2 months ago

601 Views0 Comments

Volunteers and staff at the National PKU Alliance recently visited Washington, D.C. to inform legislators about such critical issues as the Medical Foods Equity Act and insurance reimbursement. NPKUA Executive Directo...

Video: Interview with #PKUChat Host Lillian Rodriguez

Added by 5 months ago

963 Views0 Comments

Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...

Video: Lifting The Limits For PKU

Added by 6 months ago

1.07K Views0 Comments

Christine Brown, Executive Director of the National PKU Alliance, discusses a new fundraising campaign to raise funds for PKU research. More information can be found at http://npkua.org/NewsEvents/LiftingtheLimits.aspx.

Video: PKULifeTV Trip to Australia 2014

Added by 7 months ago

655 Views0 Comments

In October 2014 I traveled across the world to Australia to attend some PKU events. Here's a quick recap of my trip, and some insight into the PKU experience in Australia.

Video: Northwest PKU Alliance Family Camp

Added by 9 months ago

883 Views0 Comments

Dr. Cary Harding shares some information about a recent gathering of international PKU researchers. Shot on location at the Northwest PKU Alliance Family Camp in Oregon.

Most Viewed

Short Film: For Katy – Now Free to View!

Added by 1 year ago

21.35K Views10 Comments

"For Katy" is now free to view thanks to PKULife.tv's sponsor, PKU Perspectives! Katy is seven years old and has Phenylketonuria (PKU), a rare genetic disease in which the body cannot metabolize protein properly. M...

Short Film: My PKU Life

Added by 3 years ago

8.92K Views11 Comments

My name is Kevin Alexander, I'm a professional videographer, and I have PKU, also known as Phenylketonuria. This is my story.

Video: Tuxes for Tia

Added by 1 year ago

7.28K Views0 Comments

Produced in partnership with the National PKU Alliance, this film illustrates the daily challenges of living with PKU... and why staying on the "diet for life" is so essential.

Video: The Story of Newborn Screening

Added by 1 year ago

5.19K Views2 Comments

The Story of Newborn Screening Presented by Association of Public Health Laboratories A Creative Control Films production

Most Liked

Short Film: For Katy – Now Free to View!

Added by 1 year ago

21.35K Views10 Comments

"For Katy" is now free to view thanks to PKULife.tv's sponsor, PKU Perspectives! Katy is seven years old and has Phenylketonuria (PKU), a rare genetic disease in which the body cannot metabolize protein properly. M...

Short Film: My PKU Life

Added by 3 years ago

8.92K Views11 Comments

My name is Kevin Alexander, I'm a professional videographer, and I have PKU, also known as Phenylketonuria. This is my story.

Video: Tuxes for Tia

Added by 1 year ago

7.28K Views0 Comments

Produced in partnership with the National PKU Alliance, this film illustrates the daily challenges of living with PKU... and why staying on the "diet for life" is so essential.

Video: PKULife.tv Announcement

Added by 1 year ago

2.43K Views3 Comments

PKU Advocate Kevin Alexander announces plans for future content on PKULife.tv.

Video: How to Maintain a Good Relationship with your PKU Clinic

Added by 1 year ago

5.17K Views3 Comments

Dietitian Kea Crivelly from Tulane University Medical Center shares some tips for getting the most out of your relationship with your PKU clinic. In the video I mention the article "Newborn Screening 50 Years Later". ...

Video: Update on the Home PHE Monitor

Added by 1 year ago

3.37K Views3 Comments

Dr. Tom Franklin, Chair of the NPKUA Scientific Advisory Board, gives an update on the latest research into the development of a Home PHE Monitor. This interview was recorded on location at the 2014 National PKU Allia...

Most Commented

Short Film: My PKU Life

Added by 3 years ago

8.92K Views11 Comments

My name is Kevin Alexander, I'm a professional videographer, and I have PKU, also known as Phenylketonuria. This is my story.

Short Film: For Katy – Now Free to View!

Added by 1 year ago

21.35K Views10 Comments

"For Katy" is now free to view thanks to PKULife.tv's sponsor, PKU Perspectives! Katy is seven years old and has Phenylketonuria (PKU), a rare genetic disease in which the body cannot metabolize protein properly. M...

Video: Update on the Home PHE Monitor

Added by 1 year ago

3.37K Views3 Comments

Dr. Tom Franklin, Chair of the NPKUA Scientific Advisory Board, gives an update on the latest research into the development of a Home PHE Monitor. This interview was recorded on location at the 2014 National PKU Allia...

Video: PKU and the Brain

Added by 1 year ago

2.58K Views3 Comments

Dr. Shawn Christ discusses his latest research on PKU and gray matter in the brain.

Video: How to Maintain a Good Relationship with your PKU Clinic

Added by 1 year ago

5.17K Views3 Comments

Dietitian Kea Crivelly from Tulane University Medical Center shares some tips for getting the most out of your relationship with your PKU clinic. In the video I mention the article "Newborn Screening 50 Years Later". ...

Video: PKULife.tv Announcement

Added by 1 year ago

2.43K Views3 Comments

PKU Advocate Kevin Alexander announces plans for future content on PKULife.tv.