Monthly Archives: June 2013

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Video: PKU Mom Shares Diagnosis Story

Added by 4 years ago

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When Michelle Hays' daughter was nearly one year old, she received surprising news: Katy had Phenylketonuria, or PKU. The standard newborn screening test had been overlooked and the diagnosis forever changed their liv...

Never Give Up

Added by 4 years ago

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After yet another semester of abysmal grades, I was ready to throw in the towel. I was on the phone with my Dad, and he was trying to talk me out of making the biggest mistake of my life. My college career hadn't ...

Video: PKU Research & Funding

Added by 4 years ago

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Global Genes Project: A Song For Katy

Added by 4 years ago

1.56K Views0 Comments

If you're active on social media you know there are some great organizations out there that represent the rare disease community. The Global Genes Project is one of them. I connected with them last year, and was h...

Social Media & Patient Advocacy

Added by 4 years ago

2.20K Views2 Comments

How important is social media to you? How often do you use it in your PKU lifestyle? I posed these questions on my Facebook Page a few weeks ago. Well, earlier this week I spoke about Social Media and Patient Advo...