Monthly Archives: April 2014

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Video: Organizing PKU Meetups

Added by 3 years ago

2.53K Views0 Comments

Mackenzie Guiliano, an adult with PKU, gives tips for organizing meetups in your area with others in the PKU community.

Short Film: For Katy – Now Free to View!

Added by 3 years ago

34.31K Views13 Comments

"For Katy" is now free to view thanks to PKULife.tv's sponsor, PKU Perspectives! Katy is seven years old and has Phenylketonuria (PKU), a rare genetic disease in which the body cannot metabolize protein properly. M...

Video: How to Maintain a Good Relationship with your PKU Clinic

Added by 3 years ago

7.25K Views3 Comments

Dietitian Kea Crivelly from Tulane University Medical Center shares some tips for getting the most out of your relationship with your PKU clinic. In the video I mention the article "Newborn Screening 50 Years Later". ...