Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out her #PKUChat website and subscribe to her mailing list: http://pkuchat.weebly.com/.
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Added by Kevin Alexander 2 years ago
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Volunteers and staff at the National PKU Alliance recently visited Washington, D.C. to inform legislators about such critical issues as the Medical Foods Equity Act and insurance reimbursement. NPKUA Executive Directo...