Volunteers and staff at the National PKU Alliance recently visited Washington, D.C. to inform legislators about such critical issues as the Medical Foods Equity Act and insurance reimbursement. NPKUA Executive Director Christine Brown shares some details about the trip in this interview.
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Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...