Category: Featured Videos

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Lifting The Limits For PKU – Buffalo

Added by 7 months ago

850 Views0 Comments

Meet Norah and her family from Buffalo, NY, where the most recent Lifting the Limits for PKU fundraising event was held in April 2017.

Lifting the Limits for PKU – Seattle

Added by 1 year ago

14.98K Views0 Comments

Here is the video I produced for the Lifting the Limits for PKU – Seattle event held in October 2016. The event raised over $500,000 which will be directed towards research for new treatments, and an eventual cure, fo...

Lifting the Limits for PKU – Boston

Added by 1 year ago

745 Views0 Comments

Here is the video I produced for the Lifting the Limits for PKU - Boston event held in May 2016. The event raised over $390,000 which will be directed towards research for new treatments, and an eventual cure, for PKU.

2015 European Society for PKU Conference

Added by 1 year ago

3.79K Views0 Comments

The 2015 Annual Meeting of the European Society for PKU and Allied Disorders (ESPKU) was held in October 2015 in Berlin, Germany. Here are some highlights of the event, including appearances by members of the Følling,...

Video: Lifting the Limits for PKU – Nashville

Added by 1 year ago

8.04K Views0 Comments

Lifting the Limits for PKU is a nationwide campaign to help raise awareness and funding for the rare metabolic disease, Phenylketonuria (PKU). This film was produced for the first local event held in Nashville, TN.

Video: Lobbying for PKU on Capitol Hill

Added by 2 years ago

2.32K Views0 Comments

Volunteers and staff at the National PKU Alliance recently visited Washington, D.C. to inform legislators about such critical issues as the Medical Foods Equity Act and insurance reimbursement. NPKUA Executive Directo...

Video: Interview with #PKUChat Host Lillian Rodriguez

Added by 2 years ago

3.31K Views0 Comments

Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...

Video: Lifting The Limits For PKU

Added by 2 years ago

3.16K Views1 Comments

Christine Brown, Executive Director of the National PKU Alliance, discusses a new fundraising campaign to raise funds for PKU research. More information can be found at http://npkua.org/NewsEvents/LiftingtheLimits.aspx.

Video: PKULifeTV Trip to Australia 2014

Added by 3 years ago

2.12K Views0 Comments

In October 2014 I traveled across the world to Australia to attend some PKU events. Here's a quick recap of my trip, and some insight into the PKU experience in Australia.

Video: Northwest PKU Alliance Family Camp

Added by 3 years ago

2.48K Views0 Comments

Dr. Cary Harding shares some information about a recent gathering of international PKU researchers. Shot on location at the Northwest PKU Alliance Family Camp in Oregon.

Video: NPKUA Conference Teen Grocery Store Tour

Added by 3 years ago

3.68K Views0 Comments

Special thanks to fellow PKUer and filmmaker Kurt Sensenbrenner, who produce and directed this video. I am very, very appreciative for all his help at the conference, and am excited to share his work with you! One ...

Video: NBS Connect

Added by 3 years ago

2.30K Views0 Comments

This interview from the 2014 National PKU Alliance Conference shares information about a new resource for those in the newborn screening community.

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