Category: Featured Videos
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Meet Norah and her family from Buffalo, NY, where the most recent Lifting the Limits for PKU fundraising event was held in April 2017.
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Here is the video I produced for the Lifting the Limits for PKU – Seattle event held in October 2016. The event raised over $500,000 which will be directed towards research for new treatments, and an eventual cure, fo...
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Here is the video I produced for the Lifting the Limits for PKU - Boston event held in May 2016. The event raised over $390,000 which will be directed towards research for new treatments, and an eventual cure, for PKU.
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The 2015 Annual Meeting of the European Society for PKU and Allied Disorders (ESPKU) was held in October 2015 in Berlin, Germany. Here are some highlights of the event, including appearances by members of the Følling,...
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Lifting the Limits for PKU is a nationwide campaign to help raise awareness and funding for the rare metabolic disease, Phenylketonuria (PKU). This film was produced for the first local event held in Nashville, TN.
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Volunteers and staff at the National PKU Alliance recently visited Washington, D.C. to inform legislators about such critical issues as the Medical Foods Equity Act and insurance reimbursement. NPKUA Executive Directo...
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Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...
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Christine Brown, Executive Director of the National PKU Alliance, discusses a new fundraising campaign to raise funds for PKU research. More information can be found at http://npkua.org/NewsEvents/LiftingtheLimits.aspx.
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In October 2014 I traveled across the world to Australia to attend some PKU events. Here's a quick recap of my trip, and some insight into the PKU experience in Australia.
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Dr. Cary Harding shares some information about a recent gathering of international PKU researchers. Shot on location at the Northwest PKU Alliance Family Camp in Oregon.
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Special thanks to fellow PKUer and filmmaker Kurt Sensenbrenner, who produce and directed this video. I am very, very appreciative for all his help at the conference, and am excited to share his work with you! One ...
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This interview from the 2014 National PKU Alliance Conference shares information about a new resource for those in the newborn screening community.