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The 2015 Annual Meeting of the European Society for PKU and Allied Disorders (ESPKU) was held in October 2015 in Berlin, Germany. Here are some highlights of the event, including appearances by members of the Følling,...
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Lifting the Limits for PKU is a nationwide campaign to help raise awareness and funding for the rare metabolic disease, Phenylketonuria (PKU). This film was produced for the first local event held in Nashville, TN.
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Volunteers and staff at the National PKU Alliance recently visited Washington, D.C. to inform legislators about such critical issues as the Medical Foods Equity Act and insurance reimbursement. NPKUA Executive Directo...
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Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...
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In October 2014 I traveled across the world to Australia to attend some PKU events. Here's a quick recap of my trip, and some insight into the PKU experience in Australia.
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Dr. Harvey Levy with Boston Children's Hospital shares some tips for new parents of children with PKU.
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Jeb Haber shares how you can get involved in PKU Awareness.
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Kristen Vanags discusses the latest efforts to get insurance coverage for PKU medical foods in the United States.
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Dr. Shawn Christ discusses his latest research on PKU and gray matter in the brain.
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Dr. Tom Franklin, Chair of the NPKUA Scientific Advisory Board, gives an update on the latest research into the development of a Home PHE Monitor. This interview was recorded on location at the 2014 National PKU Allia...
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A brief look at the 2014 National PKU Alliance Conference. Stay tuned to PKULife.tv for more in-depth interviews about the following topics: - An Update on Research Development for the Home PHE Monitor - The Latest ...
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Kea Crivelly with Tulane University Medical Center answers questions about Maternal PKU.