3.86K Views0 Comments0 Likes
The 2015 Annual Meeting of the European Society for PKU and Allied Disorders (ESPKU) was held in October 2015 in Berlin, Germany. Here are some highlights of the event, including appearances by members of the Følling,...
8.12K Views0 Comments8 Likes
Lifting the Limits for PKU is a nationwide campaign to help raise awareness and funding for the rare metabolic disease, Phenylketonuria (PKU). This film was produced for the first local event held in Nashville, TN.
2.38K Views0 Comments9 Likes
Volunteers and staff at the National PKU Alliance recently visited Washington, D.C. to inform legislators about such critical issues as the Medical Foods Equity Act and insurance reimbursement. NPKUA Executive Directo...
3.46K Views0 Comments6 Likes
Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...
2.19K Views0 Comments4 Likes
In October 2014 I traveled across the world to Australia to attend some PKU events. Here's a quick recap of my trip, and some insight into the PKU experience in Australia.
4.00K Views0 Comments17 Likes
Dr. Harvey Levy with Boston Children's Hospital shares some tips for new parents of children with PKU.
2.75K Views0 Comments7 Likes
Jeb Haber shares how you can get involved in PKU Awareness.
2.58K Views0 Comments6 Likes
Kristen Vanags discusses the latest efforts to get insurance coverage for PKU medical foods in the United States.
4.97K Views3 Comments13 Likes
Dr. Shawn Christ discusses his latest research on PKU and gray matter in the brain.
5.27K Views3 Comments20 Likes
Dr. Tom Franklin, Chair of the NPKUA Scientific Advisory Board, gives an update on the latest research into the development of a Home PHE Monitor. This interview was recorded on location at the 2014 National PKU Allia...
3.17K Views1 Comments7 Likes
A brief look at the 2014 National PKU Alliance Conference. Stay tuned to PKULife.tv for more in-depth interviews about the following topics: - An Update on Research Development for the Home PHE Monitor - The Latest ...
4.50K Views0 Comments8 Likes
Kea Crivelly with Tulane University Medical Center answers questions about Maternal PKU.