34.31K Views13 Comments181 Likes
"For Katy" is now free to view thanks to PKULife.tv's sponsor, PKU Perspectives! Katy is seven years old and has Phenylketonuria (PKU), a rare genetic disease in which the body cannot metabolize protein properly. M...
20.09K Views11 Comments64 Likes
My name is Kevin Alexander, I'm a professional videographer, and I have PKU, also known as Phenylketonuria. This is my story.
4.19K Views3 Comments24 Likes
PKU Advocate Kevin Alexander announces plans for future content on PKULife.tv.
7.25K Views3 Comments24 Likes
Dietitian Kea Crivelly from Tulane University Medical Center shares some tips for getting the most out of your relationship with your PKU clinic. In the video I mention the article "Newborn Screening 50 Years Later". ...
5.23K Views3 Comments20 Likes
Dr. Tom Franklin, Chair of the NPKUA Scientific Advisory Board, gives an update on the latest research into the development of a Home PHE Monitor. This interview was recorded on location at the 2014 National PKU Allia...
4.93K Views3 Comments13 Likes
Dr. Shawn Christ discusses his latest research on PKU and gray matter in the brain.
2.20K Views1 Comments0 Likes
A few months ago I posted this open letter to the Department of Health and Human Services. At the time, we were lobbying to get metabolic formula and low protein foods included as an essential benefit as part of t...
3.15K Views1 Comments7 Likes
A brief look at the 2014 National PKU Alliance Conference. Stay tuned to PKULife.tv for more in-depth interviews about the following topics: - An Update on Research Development for the Home PHE Monitor - The Latest ...
921 Views0 Comments0 Likes
2.13K Views0 Comments4 Likes
In October 2014 I traveled across the world to Australia to attend some PKU events. Here's a quick recap of my trip, and some insight into the PKU experience in Australia.
849 Views0 Comments0 Likes
3.31K Views0 Comments6 Likes
Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...