Tag: Phenylketonuria

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Short Film: For Katy – Now Free to View!

Added by 3 years ago

34.31K Views13 Comments

"For Katy" is now free to view thanks to PKULife.tv's sponsor, PKU Perspectives! Katy is seven years old and has Phenylketonuria (PKU), a rare genetic disease in which the body cannot metabolize protein properly. M...

Short Film: My PKU Life

Added by 6 years ago

20.09K Views11 Comments

My name is Kevin Alexander, I'm a professional videographer, and I have PKU, also known as Phenylketonuria. This is my story.

Video: PKULife.tv Announcement

Added by 3 years ago

4.19K Views3 Comments

PKU Advocate Kevin Alexander announces plans for future content on PKULife.tv.

Video: How to Maintain a Good Relationship with your PKU Clinic

Added by 3 years ago

7.25K Views3 Comments

Dietitian Kea Crivelly from Tulane University Medical Center shares some tips for getting the most out of your relationship with your PKU clinic. In the video I mention the article "Newborn Screening 50 Years Later". ...

Video: Update on the Home PHE Monitor

Added by 3 years ago

5.23K Views3 Comments

Dr. Tom Franklin, Chair of the NPKUA Scientific Advisory Board, gives an update on the latest research into the development of a Home PHE Monitor. This interview was recorded on location at the 2014 National PKU Allia...

Video: PKU and the Brain

Added by 3 years ago

4.93K Views3 Comments

Dr. Shawn Christ discusses his latest research on PKU and gray matter in the brain.

An Open Letter to the Department of Health and Human Services

Added by 5 years ago

2.20K Views1 Comments

A few months ago I posted this open letter to the Department of Health and Human Services. At the time, we were lobbying to get metabolic formula and low protein foods included as an essential benefit as part of t...

Video: 2014 National PKU Alliance Conference Overview

Added by 3 years ago

3.15K Views1 Comments

A brief look at the 2014 National PKU Alliance Conference. Stay tuned to PKULife.tv for more in-depth interviews about the following topics: - An Update on Research Development for the Home PHE Monitor - The Latest ...

Video: Raising Children with PKU

Added by 4 years ago

921 Views0 Comments

Video: PKULifeTV Trip to Australia 2014

Added by 3 years ago

2.13K Views0 Comments

In October 2014 I traveled across the world to Australia to attend some PKU events. Here's a quick recap of my trip, and some insight into the PKU experience in Australia.

Video: PKU and Insurance

Added by 4 years ago

849 Views0 Comments

Video: Interview with #PKUChat Host Lillian Rodriguez

Added by 2 years ago

3.31K Views0 Comments

Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...

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