Tag: Phenylketonuria

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Video: Organizing PKU Meetups

Added by 3 years ago

2.51K Views0 Comments

Mackenzie Guiliano, an adult with PKU, gives tips for organizing meetups in your area with others in the PKU community.

Short Film: For Katy – Now Free to View!

Added by 3 years ago

33.99K Views13 Comments

"For Katy" is now free to view thanks to PKULife.tv's sponsor, PKU Perspectives! Katy is seven years old and has Phenylketonuria (PKU), a rare genetic disease in which the body cannot metabolize protein properly. M...

Video: How to Maintain a Good Relationship with your PKU Clinic

Added by 3 years ago

7.18K Views3 Comments

Dietitian Kea Crivelly from Tulane University Medical Center shares some tips for getting the most out of your relationship with your PKU clinic. In the video I mention the article "Newborn Screening 50 Years Later". ...

Video: PKULife.tv Announcement

Added by 3 years ago

4.13K Views3 Comments

PKU Advocate Kevin Alexander announces plans for future content on PKULife.tv.

Video: Rare Disease Day Promo

Added by 3 years ago

3.13K Views0 Comments

Rare Disease Day is an annual worldwide event with one goal in mind: to raise awareness of rare diseases. Please join us on the last day of February as we raise our voices to support those with rare diseases.

Medical and Dietary Guidelines for PKU Treatment

Added by 3 years ago

3.00K Views0 Comments

I received an email from the National PKU Alliance with an important announcement. The National PKU Alliance and the Canadian PKU and Allied Disorders have announced the following medical and dietary guidelines for th...

Video: Tuxes for Tia

Added by 4 years ago

9.19K Views0 Comments

Produced in partnership with the National PKU Alliance, this film illustrates the daily challenges of living with PKU... and why staying on the "diet for life" is so essential.

Video: Camp PHEver 2013

Added by 4 years ago

1.99K Views0 Comments

Highlights from Camp PHEver 2013. Camp PHEver is for children and adolescents with PKU and their siblings. As you can tell from this video, there are MANY activities! For more information, contact Camp PHEver: www.cam...

Video: PKU Mom Shares Diagnosis Story

Added by 4 years ago

2.04K Views0 Comments

When Michelle Hays' daughter was nearly one year old, she received surprising news: Katy had Phenylketonuria, or PKU. The standard newborn screening test had been overlooked and the diagnosis forever changed their liv...

Video: PKU Research & Funding

Added by 4 years ago

1.62K Views0 Comments

Video: Amino Acid Blocking Research

Added by 4 years ago

973 Views0 Comments

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