Tag: PKU

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2015 European Society for PKU Conference

Added by 1 year ago

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The 2015 Annual Meeting of the European Society for PKU and Allied Disorders (ESPKU) was held in October 2015 in Berlin, Germany. Here are some highlights of the event, including appearances by members of the Følling,...

Video: Lifting the Limits for PKU – Nashville

Added by 1 year ago

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Lifting the Limits for PKU is a nationwide campaign to help raise awareness and funding for the rare metabolic disease, Phenylketonuria (PKU). This film was produced for the first local event held in Nashville, TN.

Video: Lobbying for PKU on Capitol Hill

Added by 2 years ago

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Volunteers and staff at the National PKU Alliance recently visited Washington, D.C. to inform legislators about such critical issues as the Medical Foods Equity Act and insurance reimbursement. NPKUA Executive Directo...

Video: Interview with #PKUChat Host Lillian Rodriguez

Added by 2 years ago

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Lillian Rodriguez is an actress in New York City. She also has PKU. Recently she began hosting a Twitter chat called #PKUChat. We spoke about #PKUChat and how people can participate. For more information, check out he...

Video: PKULifeTV Trip to Australia 2014

Added by 2 years ago

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In October 2014 I traveled across the world to Australia to attend some PKU events. Here's a quick recap of my trip, and some insight into the PKU experience in Australia.

Video: Advice for New Parents of a Child with PKU

Added by 3 years ago

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Dr. Harvey Levy with Boston Children's Hospital shares some tips for new parents of children with PKU.

Video: PKU Awareness Events

Added by 3 years ago

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Jeb Haber shares how you can get involved in PKU Awareness.

PKU Medical Foods Advocacy

Added by 3 years ago

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Kristen Vanags discusses the latest efforts to get insurance coverage for PKU medical foods in the United States.

Video: PKU and the Brain

Added by 3 years ago

4.90K Views3 Comments

Dr. Shawn Christ discusses his latest research on PKU and gray matter in the brain.

Video: Update on the Home PHE Monitor

Added by 3 years ago

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Dr. Tom Franklin, Chair of the NPKUA Scientific Advisory Board, gives an update on the latest research into the development of a Home PHE Monitor. This interview was recorded on location at the 2014 National PKU Allia...

Video: 2014 National PKU Alliance Conference Overview

Added by 3 years ago

3.13K Views1 Comments

A brief look at the 2014 National PKU Alliance Conference. Stay tuned to PKULife.tv for more in-depth interviews about the following topics: - An Update on Research Development for the Home PHE Monitor - The Latest ...

Video: What is Maternal PKU?

Added by 3 years ago

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Kea Crivelly with Tulane University Medical Center answers questions about Maternal PKU.

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